I could really Yell or Smack a Pediatrician

Ok so here I go with a vent for all LOL.. Bubba's main pediatrician recently closed his practice. Not because of anything bad or loss of business but for bettering our local ER and bringing in a Pediatric Urgent Care. Which Yuma needs terribly. BUT!! I am now at the mercy of Pediatricians that I feel are uneducated in the aspect of special needs. Do not get me wrong, they know special needs they handle special needs but they are NOT Bubba's fav Pediatrician. I guess I'm partial to him because he and I had an understanding and worked well together. But now I am fighting all over again...
I cannot stand a doctor talking to me as if I am stupid. Yet when I tell him something he does not want to fully hear what I am saying.. Like really I deal w/ this w/ my dbf I do not and will not take it from someone who gets paid to listen to my issues or concerns on my son... Men are IDIOTS... Except my son's they have yet to take on the idiot role. Haha!!

The School Life....

So my baby is no longer a baby (well obviously since he is 4 now LOL). I used to get away with everyone telling me come on now you know your getting the baby itch (seriously is there such a thing??) and I would say no way I have my baby. Since Bubba is very little it really is like having a baby around still. He isn't talking or running around he is combat crawling and making vocal sounds just nothing that really has any words to it. At one point a while ago there was the mamama and the occasional dadada but that has since stopped. Is it a regression? Maybe or maybe its Bubba say'n hey I know who you are and how to get your attention without saying Mama or Dada.. And he does believe me.

For those that have a special needs child or a family member with a special needs child getting them in school if they need equipment to do so is such a PITA (pain in the a..) For almost a year we were on the schedule for the wheelchair clinic. Since Bubba cannot walk he must be transported to school and within school boundaries in a wheelchair/transportation chair. Which is great once we finally got it. It looks like a wheelchair but I have been calling it his "Supped-Up" wheelchair. Because it has special padding, harnesses, a work tray & a wheelie bar (which of course is the best part LOL). Yes when the time comes he will learn to pop a mean wheelie... LOL...

Since Bubba has started school (he is in Pre-K) he has shown a different side of himself. He is happier, makes more noises, constantly active and doing something with his toys. Just his alertness is incredible. He actually tries and watches some television. Where before he wouldn't look at it much. I am grateful for the new Bubba that has evolved in just this first month of school. Whats also wonderful is he is not in just a "Special Ed" class. There are normal children among the special needs children. This is great because kids that do not know the difference between normal and special are now given a new look at others. Even though it was a scary thought and his father did not think he was ready for it. I have always been the one that pushes the need for him to live as much of a normal life as he can. And just his reaction for school is AWESOME!! His daily excitement of the bus ride and the chair ride to class he is all smiles and raspberries!! That in itself is pure heaven hearing the sounds of his happiness.

So my baby is no longer a baby he is a bone-a-fied School Boy aka Big Boy!!!!

My First Post

So I've read and seen many other blogs and just wished I had the drive to be able to start m ine and keep it fresh and up and something others will relate too and will want to read, share ideas, do some craft-lucks (like a pot luck but we do a trade and send do others), help raise awareness for other special needs families and really be a place to know you are not alone. My name is Mellisa and I'm a mother of a 3 year old Special Needs Child and a 9 year old. Like many special needs children my kiddo is unique. He has never been given an exact diagnosis but more of a general "Failure to Thrive" & "Globally Delayed" with texture and feeding issues. My little man Bubba (his nickname) also has a VP Shunt for his Hydrocephalus. Has had bi-lateral hernia repair, hypospadias & cortaid repair. Has had many febrile seizures (seizure free since May-June '08). Has had the expensive genetic testing and has passed that with no abnormalities showing. As great as a relief that is, it is also a disappointment. Will we ever get an exact diagnosis or will it be just one of those cases we will never really know. Bubba is very small, does not walk or talk he's gotten the combat crawl down to a pat and can sit up on his own, roll everywhere also and clap. He loves ceiling fans, he will babble or attempt to and get so excited and laugh and do the butt bump when he see's one on or just going off. Its his best friend and sometimes the highlights of his days. We have seen so many doctor's and specialist with the same results. We do not know but he is unique and your doing an awesome job mom. Keep up the good work. But do you ever wonder if that is enough?? I do.. Many special needs families know how their childrens future will be.. I don't... I will be adding more and more as we go along this journey together. Please share your stories, your fears, your laughters too. I will be posting craft ideas, sharing them too. So please do the same. I love to quilt, I attempt to scrapbook, reading books, and my life is are my boys.... I hope you come back often and share your experiences too. I am me, I am powerful, I am a special needs mom & that makes me Super Mom