My First Post

So I've read and seen many other blogs and just wished I had the drive to be able to start m ine and keep it fresh and up and something others will relate too and will want to read, share ideas, do some craft-lucks (like a pot luck but we do a trade and send do others), help raise awareness for other special needs families and really be a place to know you are not alone. My name is Mellisa and I'm a mother of a 3 year old Special Needs Child and a 9 year old. Like many special needs children my kiddo is unique. He has never been given an exact diagnosis but more of a general "Failure to Thrive" & "Globally Delayed" with texture and feeding issues. My little man Bubba (his nickname) also has a VP Shunt for his Hydrocephalus. Has had bi-lateral hernia repair, hypospadias & cortaid repair. Has had many febrile seizures (seizure free since May-June '08). Has had the expensive genetic testing and has passed that with no abnormalities showing. As great as a relief that is, it is also a disappointment. Will we ever get an exact diagnosis or will it be just one of those cases we will never really know. Bubba is very small, does not walk or talk he's gotten the combat crawl down to a pat and can sit up on his own, roll everywhere also and clap. He loves ceiling fans, he will babble or attempt to and get so excited and laugh and do the butt bump when he see's one on or just going off. Its his best friend and sometimes the highlights of his days. We have seen so many doctor's and specialist with the same results. We do not know but he is unique and your doing an awesome job mom. Keep up the good work. But do you ever wonder if that is enough?? I do.. Many special needs families know how their childrens future will be.. I don't... I will be adding more and more as we go along this journey together. Please share your stories, your fears, your laughters too. I will be posting craft ideas, sharing them too. So please do the same. I love to quilt, I attempt to scrapbook, reading books, and my life is are my boys.... I hope you come back often and share your experiences too. I am me, I am powerful, I am a special needs mom & that makes me Super Mom